Just So You Know…

This doesn’t make me an unpatriotic American, just a human being with a bleeding heart.

I dread the day the Affordable Care Act is repealed and dismantled. Which seeing as it has passed both in the Senate and the House, is becoming an unfortunate reality.

As an aspiring writer and future grad student(hopefully), I was excited about being covered by my parent’s insurance until I was 26. It would give me more time to not worry about  being in a ‘real’ job, and allow me to pursue art with passion because insurance is expensive and…

…I have medical conditions. My parents’ insurance is generous and helps me afford my doctor visits, but more importantly, my medicine. Without it I. Could. Not. Function. But if the pre-existing medical condition protection clause that fully protects my care, regardless of pre-existing conditions, is repealed (which of course is happening)…

…I’d be spending ~$200 a month on medicine. Not to mention I’d struggle if not be  unable to obtain insurance because of my health conditions. And I have to see specialists so I wouldn’t be able to afford all my doctor visits either.

I’m a 21 year old college student. I should be prepping myself for class, studying for GREs, and perfecting my craft. I shouldn’t be stressing about how to keep my medical costs reasonable, and be thinking about the unfortunate possibilities my future might hold. (Will I have to emigrate? Will I have to take up a job that kills my soul? What if my disease progresses? What do I do if I can’t afford to live?) 

 I’m just one person, and this is one tiny issue. There is climate change, poverty, immigration, class, race, and so many other problems. Progress and the change that come with it can be scary at times, but we cannot regress. Things cannot be the way they were ever again. But we can try to learn, move forward, and find ways to better ourselves and the situation at hand. 

The repealing of this flawed, but progressive and monumental legistaltion will not make my America ‘great’ again. It’ll make it hell.

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Refraction of Summer

It has been brought to my attention by Sim, that I haven’t written at all in some time now. I know I have been delinquent. I have sat down and tried to write posts but they just haven’t felt right and well, why right if you aren’t sure what to say or feel.

So I will start where I left off. The end of the school year and the start of summer.

The end was agonizing and stressful and by the end, I was such an emotional mess I was relieved to leave. I was thrilled to be home with my dogs, to sleep, and  to be alone and away from people, something that you don’t really realize until you live with strangers and in a dorm. Summer for once seemed like it was going to be a rejuvenating experience.

In some ways it was. I recharged for the school year. I was able to relax and indulge in my love of reading which resulted in my impressive feat of completing 25 books. I spent time with my dogs. I cut my hair short again.

In other ways, it wasn’t. My arthritis flared mildly, and I was in an almost constant state of exhaustion or achiness. I felt incredibly isolated and lonely at times, unable to connect. Without schoolwork to occupy me, my mind sometimes crumbles into an emotional inconsistency and habit of hyper-analysis.

I figured out I’m okay at writing poetry. I took an online poetry class for my major and in the process of producing some material, I realized that I have a lot of things that I need to emotionally process, that I had convinced myself I didn’t need to. As upsetting as it was, it was also soothing to pour everything raw onto the page.

My jobs at home were the same as always, and the tedium didn’t drive me insane. Rather it was the creepy men who forced undesired attention and comments on me while I had to avert my eyes from their profane leers, trying not to scream or become physically ill. People are shitty, people are shitty.

However, my job working at a writing camp this summer helped me solidify confidence in what I want to do (writing and teaching), and it was one of the most wonderful feelings in the world. I feel ever more confident about this choice, but at times I still do worry and have uncontrollable moments of stress over whether I am making the right decision and if I am truly following my heart and what feels right.

School has resumed. Already I am drowning in readings. In fact, I should probably be doing some right now. I feel conflicted about how I feel about my classes. As an anal organizer, I need to know the assignments when they are due and the specific parameters. This semester I have several professors that only give out short term schedules a month or so at a time.

In fact, my stress is already going so high through the roof I’ve been in a low to moderate flare since class started. The other day I couldn’t open my bottle of Motrin and I cried. I hated my body. I felt awful that I was never grateful for my good health. My medicine upsets my stomach and I now have to be conscientious of not only what I eat (which is a problem for me because I love food so much) but how much I sleep even the physical activity I do. It makes me feel older than I am. It makes me angry. I try to bear it with grace and dignity but how can you when you never know when you are going to cry over your Motrin bottle?

But on a more positive note, I have discovered the magic of compression gloves. They make it so that I can function and wearing them the other day I was almost ready to weep with joy for I couldn’t remember the last time my hands felt that good. We must delight in the miracles anyway that we can.

 

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Will this food make me flare up tomorrow? Probably. Will I eat it anyways? Probably.

 

Looking Backward, Stepping Forward

“Go back?” he thought. “No good at all! Go sideways? Impossible! Go forward? Only thing to do! On we go!” So up he got, and trotted along with his little sword held in front of him and one hand feeling the wall, and his heart all of a patter and a pitter.”
J.R.R. Tolkien, The Hobbit

 

It has been 3 weeks  now since I have been home from college. I managed to get through my third year of college, and my first year at Ithaca. And I am very, very tired.

Going into Ithaca I struggled. I felt incompetent. My brain felt rusted-over from a perturbing semester abroad, and a distressing summer spent working jobs that well, I sure as hell didn’t love. I was hoping, dreaming that Ithaca would be my place, that I would find my people. The strain of the cost of college and being unable to find employment gnawed at me constantly, and I faced an immense fear that I would not do well in my classes and that I would not succeed. But in the end, I pulled through and managed to make Dean’s List. Twice.

While I  had at least come to accept that I have Rheumatoid Arthritis, I was still living in denial. At midterms in October, I pushed too hard, stressed too much and had a painful flare that left me incapacitated. I couldn’t type, I couldn’t write, I couldn’t finish my midterm essay. At the moment, I was frustrated, but there is still an immense wave of frustration and shame. I can’t work the way that I used to anymore. I felt like an alien trapped in my own body.

But I made it and whipped my mind back into shape. I approached the next semester eager and ready for my second round with 18 credits. But within a month, I realized that it was way too much. The cold of CNY winter chilled me to the core. My body, already exhausted from engaging in RA’s driving my immune system into a warp speed frenzy of ‘cannibalistic’ practices tired so easily with the cold. I could sleep for 12 hours a day, and still be sleepy. My class load was more intense, wading deeper into upper-level classes that require more time, thought, and homework I found I had next to no time to socialize. Sleep and School. On top of this, I forgot how cloudy and dreary CNY is, and I felt the lack of sun in my productivity and my overall mood.

There comes a point in all of this that I suddenly realized that part of me regretted my decision to come to Ithaca. That perhaps, I made the wrong choice. As the semester progressed, I realized that while I was making friends, I was making more acquaintances than friends. I felt so incredibly lonely. As an old soul, non-drug/non-alcohol user, who is always incredibly emotionally invested in everything, and a painfully shy introvert posing as an extrovert, I felt like I hadn’t found my people. And I need my people for support. As I thought about reaching out to other friends in other places, I found myself hesitating and stressing over whom to turn to.

I felt super shaken still about grades and academics, and for a few brief weeks seriously considered dropping my second major in history down to a minor. Will I even be capable of grad school, or would my RA reduce me to a dependent, pathetic mess? Which rattled me enough that I became unsure of what it is that  I want to do.

On the brink of despair, I finally admitted that it was time to sit down and see a therapist. So I did. And I will continue to do so in the fall. I still have a lot of mourning and emotional processing to do with my RA. And the first step has been realizing no more  18 credits a semester. The second step had been accepting that I need to exercise and yoga consistently to keep my body strong but to also manage stress and keep it low. Thirdly I need to choose wisely where and into whom I put my time and energy.

I still feel lost, I still feel uncertain, I still feel alone. But I know that I must, that I can, and that I will endure. I know that I will make the most of my remaining classes, and next year will continue to cultivate the good friendships and things in my life. I’ve bought some books on RA to help educate me moving forward. So far this summer I’m already feeling recharged. I’ve been running with my mom and I have been significantly less stressed. I have spent some beautiful moments with some friends that have made me feel loved and supported and capable of taking on the world.

It is difficult some days but I have to keep thinking forward, to not let my pain and new limitations get me down. I can, and I will succeed if I put my mind to it.

21 on a Tuesday

It is hard to comprehend that I am am turning 21 on Tuesday. And no, I will not be drinking. Yes, you read that right. No alcohol for moi.

No, I have had it before and in fact love my mixed drinks and wine (so tasty). I just have finally made the proactive choice to not drink at this point in my life, for a couple of different reasons.

  1. I need my liver uninhibited. I dread the possibility that my current RA meds will become ineffective for any number of reasons and the next strongest stuff takes a toll on the liver, so I would like to keep it as healthy as possible.
  2. I like being in control. When I drink, I lose fine motor control, like everyone else. But I am incredibly upset by the fact that I have to think really hard about not slurring my words and what it is I am saying. I get stressed by the fact there is so much I cannot have control over, so intentionally putting myself in a situation where I lose control my faculties even a little bit is enough to send me weeping.
  3. I don’t like how sad it makes me. As someone who deals with depression and sadness alcohol is literally a horrible idea. Its a downer which makes it even a worse experience when I suddenly become a weeping mess. Not to mention I cannot emotionally bring myself to physically function the next day.
  4. There is a medical history of addiction in my family, and with this I have chosen to follow my parents choice to refrain from alcohol, and refrain from exposing myself to that possibility.
  5. I just don’t want to. Yeah its tasty sometimes, but in my opinion it isn’t that fun.

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For my birthday, unlike last year, I won’t be doing anything exciting. I am going to lunch with my parents, working, going to class, and then I have an honor society induction that evening. I’ll have a lot of homework to do and a paper to work on. And I don’t have a car, and my friends are really to busy to do anything. That makes me a little sad, but I guess I just have to cope with that. A lot of people don’t understand how important my birthday or celebrating it is to me, because its about managing to make it another year despite everything. So I guess I will celebrate it on my own, just like last year. And that wasn’t so bad. At least I’ll get a real birthday treat this year, not a brownie flavored protein bar. Ice Cream, here I come!

In other news, I have figured out my class schedule for next year, and will be registering in two weeks. I should get into everything I need. Hopefully. I mean  I will be a senior…even though I will be in Ithaca an extra semester. And besides, I’m am preregistered for most of those classes so its really just one that I actually need to worry about.

My arthritis flared up last week and it was really frustrating. I think the stress of everything right now is not sitting well with it, so I have put myself back on my 81mg aspirin routine and it seems to be doing just fine. I definitely will never again be taking an 18 credit semester. It works when you are only taking 100 and maybe some 200 level classes, but with upper level classes? Forget it.

There is a month left of school, and I can totally make it. I think.

Donation, Service, Making a Difference

In high school I decided, quite brashly, that I was going to change the world.Or at least some peoples’ lives for the better. In community college I began to look into donating blood, with the hope of one day donating bone marrow. Unfortunately I had been possibly exposed to Malaria abroad and had to put off donating blood for a while. I registered as an organ donor. I decided that I wanted to do the peace corp, or some other long term service project abroad.

But sometimes things happen. Like Rheumatoid Arthritis.

I cannot donate blood. Nor Bone marrow. And  RA is a disqualifying condition for the peace corp. At least my body can still be used for science once I die.

Part of me wanted to make a strong and obvious physical impact on people. Now I realize that since I am unable to do it in the ways that I originally intended that I am going to have to go about changing the world in other ways, in living fingerprints on people’s minds, hearts, memories.

I am going to write and publish. I am going to teach and stimulate the growth of new ideas and dreams. While I cannot offer people the raw, physical resource of myself, I can offer them my time and soul.

Its frustrating when you have plans on how you want to live your life and they fall through. But I am grateful that I still have the capacity to make a difference, and I know that someday, somehow, I will.

Arm Balances and Inversions

While this break I was hoping to get back into my daily yoga routine, I am sad to say it didn’t happen. Between work, the cold, and feeling perpetually drained and exhausted I often lacked the motivation. When I did have the motivation the frustration of my stiffness and the aches caused by my Rheumatoid Arthritis didn’t exactly make it a wholly relaxing experience. While my medication has worked for the most part, thank goodness, I still get some stiffness in my wrist. I seriously took for granted how many poses require using your hands and wrists in supporting your body weight.

I have always been afraid of inversions. Something about falling, landing the wrong way and smashing my mind, losing my ability to think the way I do. Now, I’m not sure if I will ever be able to do them. While it is important to keep moving my wrists and hands, to keep up range of motion and strength as best I can. You can’t keep pushing, you’ll cause damage. And needless to say the cold hasn’t exactly helped much. Maybe with a stronger core and some more upper body strength it will come. But I cannot help but cringe of placing all my body weight on my hands.

I am trying not to get frustrated or angry. Trying to stay optimistic. I have been meditating regularly. I finally got myself a zafu and some Mala beads and for 5-10 minutes I sit and try to quite and focus myself. I have been successful with that, but I struggle with consistency. I’ve been working a lot this break. I didn’t have the opportunity to work hardly at all this past semester because of conflicting schedules. I will be this coming semester, hopefully getting at least triple the hours I had last semester. I dream of a day when college students in this country don’t have to work while they study. I dream of a day when I can do inversions. Well, at least arm balances.

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